I posted this on his blog before his birthday, I still feel the same though & wanted to repost it here for others, so they can have HoPE for the future also.

♥     ♥     ♥     ♥      ♥     ♥      ♥     ♥     ♥     ♥

As London’s 10th birthday comes around I am very emotional.  When he was diagnosed at just 2 days old we were faced with the very real possibility of losing him, we are still faced with that possibility, it is something that we must think about every day.  I didn’t dare dream of the future until he was safely past his required surgeries.  We wondered if we would see him grow up and we vowed that he would be happy and we would have no regrets.  Now here we are, 10 years down, many many more to go!  London has come this far with flying colors and will surpass everyone’s expectations!  I now, finally, dare to dream…. Dream about his 16th, him driving, his 18th, his graduation, his 21st, college, marriage, and even holding my grandkids!  Things that most people take for granted, these are the things that we, as London’s parents, dream about & hope against all hope that London will be with us & be able to achieve these things.  And something that I know all HLHS & CHD parents will understand, but may sound morbid to everyone else:  MY SON WILL BE BURYING ME!  (Not the other way around)  No parent should have to bury their child, but as a person with HLHS, we do not know what his future holds, the oldest people living with HLHS are only in there late 20′s & early 30′s, but medicine has come a long ways, more & more kids with HLHS are living & my son is one of them!  I love you so much London Max II!  You are my sunshine!

PS. I also want to thank Dr Delius, his surgeon for his 1st 2 surgeries; his surgeon at UCSF; Dr Choy, his cardiologist; Celia, Dr Choy’s wonderful head nurse who has been there for us through everything!; Dr Yumul, his wonderful pediatrician for the first 8 years of his life, and everyone else, dr’s & nurses alike, who helped to keep my son alive and helped us get through it. Thank you to my family for being there for us and to our friends also. Thank you Shannon, for showing me that there were other people out there who felt the same way we did, and for taking the idea of starting our support group & running with it. I know that not only me, but over a thousand people thank you for getting the group started in 2002! ♥

Right after Norwood (1st open-heart surgery)August 2, 2000 ~ 5 days old

Just after Glenn (2nd open-heart surgery) February 1, 2001 ~ 7 months old

After Fontan (3rd open-heart surgery) August 1, 2002 ~ 2 years old

London earned his Yellow Belt in Kajukenbo July 31, 2002~10 yrs old

Our son London II was born on July 28, 2000.  On July 30, 2000 he literally crashed & had to be stabilized and life flighted to UC Davis where he was hooked up to all kinds of wires & machines & IV meds.  That was the day we were told he had a CHD called Hypoplastic Left Heart Syndrome or HLHS.  We were given 3 options and his odds of living through them; Compassionate Care (take him home to die), a heart transplant (baby hearts are really hard to find) & if you can find one, the odds of him living through the surgery were 30%, and the last option was a series of at least 3 open heart surgeries with a 30% chance of making it through the first one.  We decided that we just had to give him a chance at life, even after his own cardiologist told us that if this were his child he would take him home to die.  We chose the 3 surgeries.  London had his 1st surgery at just 5 days old.  We spent the next 6 weeks in the NICU.  We were not allowed to hold him for almost 2 weeks after his surgery.  He finally went home where we stayed until his 2nd surgery at 7 months.  He spent 5 days in the hospital for that one.  After this surgery he had a few problems with collaterals (extra veins that grow from the heart to the lungs to try to compensate for low blood oxygen levels, these sound like they would be good, but they are bad for a heart child), so he had several heart caths and ended up having to have his 3rd surgery early.  So he had his 3rd open heart surgery at 2 years of age, 1 week after he turned 2 in fact.  And 1 week later, due to fluid & infection complications, he had his 4th open heart surgery.  Because of these complications we spent 6 weeks in the hospital and once again I was not allowed to hold my baby for 2 weeks after his surgery.  Thank god we have been fortunate enough to have not had any surgeries or hospitalizations in the last 7 1/2 years and he is now doing wonderful.  However, his heart is not “fixed”.  This is something he will have to deal with for the rest of his life, after all, he was born with only half a heart.  No one knows what the future holds for these children, the oldest HLHS’ers are in their early 30′s, babies born with HLHS did not survive before that.  So we don’t know how long he will live, we don’t know if he is going to outlive us, something that all parents look forward to and a lot of parents take for granted.  As parents we don’t want to think about ever having to bury your child, but as HLHS parents most of us deal with this thought on a daily basis as it is a very real possibility.  We certainly don’t want to think about it, but it can’t be helped, since we don’t have any idea what the future holds for these children.  This has been just a glimpse into my life of being a parent to a child with HLHS.  And even with knowing what I know now about this life, I would not trade him for the world, he is the most loving child any one could ever ask for.

CHD’s are real!  Before London was born, I had heard of CHD’s, but from my experience, they were not that bad, the people I knew who had them were older, like my dad, and he did not seem to have problems that I knew of at that time and did not until he was older.  My grandma had a CHD and her son (my uncle) was born with the same one, but my grandma lived to her 80′s and did not have any heart surgeries.  It wasn’t until London that I realized that most defects are very serious and many are fatal without surgery, I also did not realize just how many people were affected by them, since I had only heard of the few in my family, none of our many friends had any.  Now I know it is a very serious problem and we need more funding for research to be done on CHD’s and also we want to make everyone aware so that no parent feels alone in this world like London & I did when London was younger, we knew no one until he was a little older with HLHS.  That is why Shannon & I founded the Hope for HLHS group shortly after we met, the group was created in 2002.  Go to http://www.hopeforhlhs.com for more information on HLHS and a link to join our group if you are affected by HLHS.

1 IN 100 BABIES WILL BE BORN WITH A CHD THIS YEAR!

Congenital Heart Defects are the #1 birth defect.

This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects.

Also, just look around at my friends and you will see the special CHD Tags I have made for their children, you will see a lot of tags and this is just a handful of all the people who are affected by CHD in some way in their life.  Just to give you an idea of just how many people are affected by it.  My Facebook profile is http://www.facebook.com/ramobley.  Anyone affected by CHD’s or just wanting to help spread awareness or wanting to know more about them is welcome to add me as a friend, just make sure to add to the request why you want to be my friend.

My links:

London’s Website

Hope for HLHS

My Facebook Profile

I am not sure where to start, but I guess letting you know how I learned about CHD. It was when my youngest son was born and i was told , quote, “your son has a lousy heart.” those words were followed by, “there is nothing we can do, take him home and enjoy him.” Okay, I am thinking, “it’s 2008, what do you MEAN, you can’t fix his heart!?” People in general percieve CHD’s to be something like a minor hole in the heart, something that can be grown into, or “fixed”. The reality is that these children, SOME of them have the option of surgery, but not without lots of risk. Christopher is one of the ones that surgery isn’t an option for. His condition of dialated left ventricular non compacted cardiomyopathy means that that when a fetus is in utero, their heart is sponge-like.​(non-compac​ted) When they are ready to be born the heart will compact and become more solidified like a muscle. CJ’s heart did not do that. Resulting in the cardiomyopa​thy (weakness of the heart). It affects his right and left ventricles where it is very hard for his heart to pump and function correctly. Nothing is missing, out of place, or backwards, It’s the whole heart, all big, stretched out, and stiff.
We took him home at 45 days of age and he was admitted into hospice the next day.The doctors told us that his prognosis was six months or less. We had to learn to accept that each day may be his last. It is a very hard thing looking into your beautiful child’s huge eyes and knowing he is just on loan for a short while. God is the only reason I made it through that period of time, and I never let go of my faith that God would make my baby whole and it was a win win situation for him no matter what. The footprints prayer, well that was me, God literally carried me through. i remember people saying they don’t know how I could sleep at night. Well, in the beginning it wasn’t easy and the pulse ox was a huge comfort as I could listen to it beep and know his heart was still beating. But somewhere along the way, I grew more confident, and eventually the pulse ox got dusty and I felt peace in knowing that Christopher was going to be okay. Some people called it denial. Some people called it an amazing act of faith. I tend to agree with the latter. I trusted God and with that trust came the biggest peace that is very hard to describe. We celebrated Christopher’s birthday weekly and monthly, cake and all. eventually, his expiration date came and went, he still remained a hospice patient, and we were still taking it one day at a time. His first birthday arrived and i cannot express to you the joy I felt that whole MONTH. The day we were promised NEVER to see was here!!! We had a huge celebration, and continued to give all honor and praise to the Lord. Christopher continued to get older and when he was 15 months old his hospice nurse decided it was time to take a look at his heart (we weren’t allowed any more echoes him being a hospice patient and they “didn’t want to keep getting our hopes up”. The doctor told us that his heart had slightly improved but that he was still hospice status. two days later we received a call from him that our visit left him feeling like it wasn’t finished and he took annother look at his echo. He also had all of his colleagues review it and Christopher’s heart had improved so much that in his good concience, he could not recertify him for hospice! Okay after trying to put into words how i felt on his birthday, this is even more difficult to describe. Our language does not have a strong enough word. I can tell you that God does reward trust and faith and Christopher is a living breathing example.
He is now 22 months old, his second birthday is rapidly approaching and I am basking in every minute with him. I still know better than to take for granted my time with him as we don’t know when god will call us home. It is a true miracle that my christopher is alive today. God is still in the miracle buisness.Also, doctors have to tell you what they have learned in the text books, but that doesn’t mean God or the child in question is reading that same book. I don’t know God’s plan, but I know that the least I can do is to continue to honor and praise Him, while also helping to spread CHD awareness.

editorial on CHD awareness in Complex Child Magazine by me:

http://articles.complexchild.com/Feb2010/00187.html

more on Christopher:

http://www.youtube.com/watch?v=EXDev5RJvJQ

http://www.caringbridge.org/visit/cj08/mystory

http://www.youtube.com/watch?v=z_3zPRZoQuI

http://www.ibelieveinsickkids.com/video/Christophers-Story

image shows a normal heart vs one with d-trans, VSD and pulm. stenosis. Also shows Rastelli and performance.

Originally used for the repair of d-trans of the great vessels w/ VSD and pulmonary stenosis, the Rastelli Procedure (named after Giancarlo Rastelli, Italian physician and cardiac researcher) is now used to repair most, if not all, cyanotic heart defects, or congenital heart defects causing a lack of oxygen-rich blood in the body, resulting in a bluish tint in the child especially the nail beds and mouth. This repair is done between the child’s first and second birthday, in order to maintain oxygen levels, a palliative Blalock Taussig shunt is given to the child.

The Rastelli is a major open heart operation, the patient is placed on cardiopulmonary bypass and the aorta is clamped. The surgeon will close the VSD (Ventricle Septal Defect) by way of a Darcon patch of sorts which will also redirect blood flow of the aorta. Then, the pulmonary artery is surgically disconnected and valved conduit is created using fabric, tissue from a cadaver, or the patient’s pericardium. This valved conduit is then used to attach the ventricle to the artery, the valve will open and close in time with the heartbeat allowing blood flow in one direction at a time. The procedure is extensive, lasting upwards of 9 hours.

Other repairs that can be made, if necessary are the removal of muscle tissue from the right ventricle that is either enlarged or obstructive to blood flow and the surgical closing of the pulmonic valve, should it be damaged.

Postoperative care in an uncomplicated case will last around 2 weeks. The valved conduit does not grow with the child, and periodic surgeries to replace this device will be necessary.

This is the operation that my son, Ronnie, is facing within a year.  If you, or anyone you know, has personal experience with this operation, I would like to hear from you.  I have heard from two others about how their child did following the Rastelli, I would like to hear from as many as possible.

Ten months ago I was being told that my local Hospital wasn’t equiped to do a C- section on me since my plattlets were low!! Great more stress and Just what i needed more worries.! Dr didn’t think that my little girl was ready to come out even though things were uncomfortable and that she was already a big baby everyone else said she would be fine if delivered then. It was finally decieded that on March 12 2009 we would be transported to Rush University!! Great almost two hours away my kids would be in Braidwood and I would be in Chicago. I wa waiting for the Ambulance to come so I called some people and one was my best friend he was so positive and caring. It was amazing. John was trying to get Mark to school and get my mom to our house so she could watch Lilly and be there when Mark got home. I thought this was the longest day of my life. The ambulance came around 0930 it was refreshing to see that the guys were so caring and comforting not to mention so funny but very proffesional!! I cried in my room enough and I was trying not to cry infront of these guys. We went through all the lights sierns were blarring weaving in and out of traffic hitting every bump!! There’s no way to miss the pot holes on the Illinois Exxpressways. We arrived at around 1115am and they were taking about the pizza place done the street wish i could of joined them but next time. Amazing all the test they did to make sure I could have surgery and the papers to sign. I cried John could not be in there when Kimmy was born. I really needed him but they said it would be ok it won’t take long and then we could see her in the nursery. At 1832 Kimberly Ann Hicks was born!! 10lbs 12oz 22inches! We went to see her in the NICU which my heart sunk! The nurse said that she was in the regular nursery for about two hours but a nurse heard something when she was breathing and that her O2 was low so she was shipped up there. I was still in my hospital bed and couldn’t comprehend what was happening!! We were there because of me I was the one who should of had problems not Kimmy! For the next two days she was holding her  own then all of a sudden she coded!! We didn’t know till the next day I wish they would of said something!! That made them realize that they could not monitor her like she needed so she was going to PICU.!! Before though we meet with Dr Polminokos Iknow I spelled it wrong. He is about six feet and had big hands!! How somone could be so delicate and have nerves of steel is awsome.Kimberly’s diagnoses was Aoritic and Subaortic Stenosis Severe Coarction of the aorta. Malaligned ventricular septal defect.Narrow complex tachycardia that required amiodarone infussion. March 31 2009 Kimbery had Arterial banding so she could come home for awhile. The plan was to let her grow some more before her open heart surgery!! She came home for about 2 months then on August 11 2009 She had Norwood Palliation and palliative Rastelli 6mmRV to PA Gore Tex conduit non valve. We were sent home in early September Kimmy went done to 8lbs 6oz and with a NG tube. She is labeled as Failure to Thrive but I think she will catch up. She’s doing good we just need to watch her O2 now because her conduit might of calcium build up in it!! We hope not we were planning on trying to have a somewhat mormal life but if not if that’s ok because we have Kimmy and we will make the best of it weither it’s Rush or Home!!

We were not aware of any of this we are very grateful that we were at such a wonderful hospital and thankful for the nurse we heard something and didn’t ignore it!

On February 14, 1991 our unborn daughter was diagnosed with serious congenital heart defects. Specifically: Single Ventricle, Pulmonary Stenosis, and Transposition of the Great Vessels. This was our first child and, yes, it was like hitting a brick wall. We had done everything “right” in terms of planning the pregnancy and my wife took excellent care of herself. This was merely a Congenital Heart Defect.
Back in those days we didn’t have internet access so we went to the medical library to begin researching our child’s diagnosis. These highly technical manuals did not paint a very pretty picture for the future. We told our families and friends and everyone prayed.
On April 30, 1991 our daughter, Alexandra, was born. My wife was able to spend about 30 seconds with Alex before she was whisked away to nearby Riley Hospital for Children in Indianapolis. I left my wife and went with the baby. To this day I can’t imagine my wife being in that room alone having just given birth and having no idea what was going on with our new daughter.
The initial diagnosis was confirmed but they said Alex looked pretty good, all things considered. After a week in NICU they basically told us to come back when she started turning blue. So, at 3 months of age we were back in the hospital for a Blalock-Taussig shunt. This surgery worked well and helped her with oxygen flow until she was 3 years old and needed a Fontan procedure. Again, Alex came through with flying colors. It’s easy to forget the weeks in the hospital, trying to make a 3-year-old walk with drainage tubes and the many unknowns.
We sailed along for 10 years just taking the regular medications before that CHD monster reared its ugly head again. We knew it was lurking around the corner and would visit again. We just weren’t sure when. From age 13 to 18, Alex had 8 more cardiac surgical procedures and untold numbers of overnight hospitalizations. These surgeries included multiple ablations which led to third-degree heart block. Which led to a dual-chamber pacemaker.
Alex is now a freshman in college studying Spanish and International and Global Studies. She has been on multiple mission trips to Mexico and Honduras. One of the Mexico trips came days after a pacemaker surgery. Our family lived in a very remote area of Honduras for 7 weeks in 2008 serving in an orphanage. We want Alex to lead as normal a life as possible even with her limitations.
I realize that each CHD kid is different. Some are more severe than others. We have good friends who are also CHD families who have worse situations than we do and they can’t imagine a day when their child will be able to do what our daughter does. They look to us and pray their daughter sees her high school graduation.
But one thing is for sure. Each of these children just wants to grow up and do “normal” things. Ride a trike. Jump Rope. Climb a tree. Swim. Ice Skate. Fish. Play soccer. Camp. Play in the band. Travel. Go to Prom. Go to college. Get married. Have a family. Live. Laugh. Love.
We have never…and I mean never…asked “why me?” It seems like such a futile exercise. A waste of time and energy. We should put our energy into funding research into CHD. We should put our energy into helping other families who are coming up behind us. We should put our energy into living and showing our children how to live and appreciate everything that we have. We are so blessed to live in the USA where we can get quality medical treatment.
In our family, a life of children and heart disease is all we have ever known since Alex was our first child. Her two younger brothers have no CHD and they also know that Alex gets hospitalized a lot and that is just the reality of our family. We look for every opportunity to laugh and love. We don’t hold Alex back. She knows her limits.
We have no idea what the future holds for Alex. Anything could happen at any time. She will never be “fixed.” Seize the day. Make a difference in the lives of those around you and those you don’t even know. We have volunteered for many charities since before Alex was born. We have raised lots of money for heart causes. After 26 years in business I have decided to make this passion my life’s work. I recently became the Director of Development for the International Children’s Heart Foundation. It doesn’t even seem like work to me. This is my life and I don’t ask “why?”.

Isla-rose hider -pettit was born with chd of severe dilated cardiomyopthy and valve regurgitation . she gave me 8-1/2 wonderful months . drs were amazed she survied a day . athanks to all for ure support and work we are all tuely amazing . and thanks for letting me share her with people. Isla and freya wher born on 23rd march 09 MY BEAUTIFUL TWINS Isla-Rose At 37 weeks i was my labour was induced because my body was having  hard time holding the girls so my waters where broke with a cream  and i was in labour after a minute took very quick and i was in labour having contractions for 1-2 mins apart for 8 hours but only 3cm dilated   . Then the difficulties came in twin 1 (isla) heart rate kept dropping  and raising very quickly  so the  drs  decided i need to have a emergency c section . iIwas rushed down to theatre  where the girls where born Isla 4lb 10  and Freya 5lb11 at 8 56 and 859pm Isla was born with the cord around her neck and took longer to respond than freya , the girsl where taken off fed , dressed and cleaned by thier dad while i was in recovery ,   At around 11pm i was taken onto the ward to see my babies freya was still awake so i had a hold but isla was sleeping peacefully soo i  thought i would have cuddle in the morning, so i went off to sleep as my babies where safe , i was awoke at  248 i remmber it soo clearly isla had been taken into the special care baby unit  because she was not feeding very well so she was given a ng tube  , but seemed to be still struggling with her breathing ,so they gave her a ecg and pulse oximetry teat and  found that her heart rate was still very high , she was then moved to picu where she needed assistance with her breathing  and also isla heart was failing we where told at our hospital they did not have the care she needed so she was moved to the royal brompton heart hospital in london , where i stayed with her sister still recovering from my operation and freya needed to to have a echo to see if they may be a problem due to isla having a problem freya was born with two holes in her heart … So I was told that Isla was  taking it very badly and she might not make the journey so i said goodbye to my baby and prayed to god to keep her safe and i would be with her soon   . Its Thursday the girls are  3 day old and  i only have freya with me and rob is in london with isla who is bieng assisted  with her breathing at 80% oxygen  and  20% isla  and on a cocktail of medicines to keep her stable  and having lots of test done and any may echo where it was the dx that Isla had severe dilated cardiomyopathy which means the hear it extremely big and the lining around isla heart is very floppy and thin and her heart is very over-active and she aslo had mild valve  regurgitation which mean she  she pumps some of her blood into her left ventricle  which sends bloods too the lungs .  Which mean theres nothing u can do for it not operation can fix it only transplant and she was too small any way and  the odds are quite low off a dmc baby to survive the procedure from then  on after me and freya arrived isla  was getting better she was coming off the ventelator slowly and recovering we where told we could go  back to our local hospital   they where amazed at her she was doing very well recovering well from her heart faliure , we arrived back at our local hospital on the tuesday and isla was gaining weight slowly and on a mixture of medicines  captori frusimide l,spirolactone, dalavit, iron  , asprin ,   she came off the ventelato rat 12 days old she was fighting to say with us. soon enough we where getting ready to take her  home  all we had she was 3 weeks old when we took her her home  is was the most nervous days of my lifes she was on a ng tube and  i learnt how to do all her meds  and cpr just in case .  After another  2 weeks off bieng at home and  many echos and esgs later the ng tube was removed it was howing that she was getting better she was growing into her heart which can happen so she is  growing nicely and we are amazed and happy news too freya holes in her heart have closed,life was getting better  , she was beating the odds so the girls are growing up very nicly we are having our routine visits to the cards all is going well and we get a letter from great ormand street childrens hospital from  the speacialist there  he wants too see isla fro a check  , so we go its  october 16th and we are are told after a long day of test for isla that isla heart has got extremly bigger in leymens terms isla now 15lb her heart was 6 times bigger than ment to be she was getting weaker  and  she could  deteriorate very quickly and our option was to get her prepared for a heart transpalnt  but sll we could do is feed her up and give her beta blockers , so thats what we did  thats all we could do Isla awas a happy child lived life to the full too look at her you would have not known she was poorly she did  not look it  , or act it  she was always very very happy and lived life too  the full   she was a loving sister, daughter , granddaughter and family member On  10th of december isla was admitted in to hospital  after she became very sleepy and    had caught a cold and cough and bieng very sick , Isla had caught broncitus  and rhino virus .  She was kept in the ward for three day but she was slowly getting worse and now needed assitant with  her  breathing and kept on a constant   , but she was not holding her feed and  losing weight fast but was till very happy   aware of everything going on around her  the nurses called her smilsa  all she did was smile but yet she was soo poorly., on monday  she was taken in to intesive care where she was bieng assisted with her breathing and our card  dr came to us and made us all ware of what was going on and they  where going to try some antibiotics to try and help her with the infection  and may have to put her on full  ventilation and put her in a coma . \Isla took to the the oxygen well and was very stable so we where sent home  after being in the same clothes for 3days  and needed to tend to her sister she needed her mummy too ..  On tuesday i was back at the hospital after rounds and stayed all day isla was doing great  responding having cuddles with mummy getting better we thought back feeds , so it got to  9pm isla sleepy peacfully we went home  .. its was 9.46 i remember it to the minute i got a sick feeling something ( a mother instict ) was not right i could not find my phone   so i sent rob back to the hospital  just to check i needed him to for my  sanity freya was asleep  so i stayed home.. Rob arrived at the hospital and called me straight away  isla had not taken to the antibiotics  very well and was slowly dieng and posioning her lungs with carbon dioxide they where just about to call as rob arrived ,  i went up to the hospital with my mum and we had to make a choice it was either isla slowly poison herself or take the small chance that she will take to the coma  , so i prayed to god  that he keep her safe   and if she needed to be with him then he take her when she is not in pain and i said tto my baby to take care and if she want to be strong and stay but if  her heart is not strong  enough she needs to be with angels , so i made the  the choice to try to ventilate her and put her into the coma … Isla died at 1 46 am wedneday morning 16-12-09  after  35mins off them trying to bring her back she put up a very good fight till the end and was very happy  and i was blessed to have her , i have learned more in the  10 months  of having children  than i knew in the whole 23  years of my life .  i am  very proud of my children and thankful for everything  they have givem me  and now i am  going to tell isla story to make people aware that chd is a big  problem in this world

• Dilated cardiomyopthy only affect 2 in 10,000 babies
• Dilated cardiomyopathy (DCM): It is also known as congestive cardiomyopathy. Dilated cardiomyopathy is most notable for an enlarged heart that contracts poorly.
• Dilated cardiomyopthy can lead to sudden death  4000 babies donot live to see thier 1st birthday

many thanks for reading our story lets make people aware of our babies

Hearts of Hope – An Infant’s Heart is Healed with Hope

Winner of the Best Student Documentary at the Illinois International Film Festival, 2009

Michel Ilbawi, M.D., leads the pediatric heart surgical team at The Heart Institute for Children. Headquartered at Hope Children’s Hospital in Oak Lawn, Illinois, they perform over 400 operations and care for more than 3,500 children with heart defects each year. With over 25 years experience as a pediatric heart surgeon and more than 20,000 surgeries performed, Dr. Ilbawi is nothing short of a miracle-worker to the families whose children he treats daily.

The documentary film, Hearts of Hope, is a once-in-a-lifetime, behind the scenes look at this amazing doctor, his dedicated staff and the families of children they fight to save everyday. In the delicate realm of pediatric heart surgery, sometimes hope is all you have. Hearts of Hope unveils a world of courage, strength and the spirit to survive, at any age.

To read more about the movie, click here. To see a trailer of the movie, click here.

Upcoming screenings:

2:00 PM, Saturday, February 6th
Mount Oxford Room, The Children’s Hospital
3123 East 16th Avenue; Aurora, CO

7:00 PM, Monday, February 8th
The Lyric Cinema
300 East Mountain Avenue, Fort Collins, CO
The run time of the film plus a short video from Hypoplastic Right Hearts is approximately 75 minutes. 
FREE for ALL, but donations are always welcome!